"Hardships often prepare ordinary people for an extraordinary destiny." C.S. Lewis
Sunday, May 13, 2012
5 Weeks Post-Op
This past Friday marked 5 weeks post-op from my trochanteric transfer osteotomy and femoral osteotomy hardware removal. I saw my local OS for new x-rays and incision check. Fortunately, my incision looks great, but the x-rays did not look as promising.
I had been anxiously awaiting this appointment to see how my bone healing was progressing. I have a history of poor wound healing, but with the FO I had a delayed union causing the bone to collapse and shifting the greater trochanter 2.5cm higher than my left hip. I was given a bone stimulator to help complete the femoral healing and it was successful. I had to have a last-minute surgery post-poned, but it was successful and then on Good Friday I had the revision to re-position the greater trochanter. I believed that using the bone stimulator from the start of this recovery would be very beneficial in the healing progress and lessen the chance for complications. This was already the surgery to fix a complication of a surgery done to fix a botched surgery. I was almost positive that my bone was healed by how I felt and that I had been using the bone stimulator religiously, but it did not seem to help as much as it was suppose to.
When speaking with Maiers he said it may be healing, but actually looked as if the bone that was re-positioned is beginning to fragment and that the major pin in place is bowing. I felt like I was punted in the gut. I am waiting to hear back from Millis, but it was not the positive news I was waiting to hear! I still feel in shock and am not sure what is going to happen next. We have tried every precaution, equipment, etc., yet I am still in the same position with even yet more complications and a right leg that is not healed. This was "suppose" to be the last right hip surgery needed, but if the trochanter fractures or breaks apart I will need another surgery being that it's attached to muscle. etc. My right leg will probably always be weaker, but the more that is needed to be done to correct issues the farther the reality of running, Commissioning as a U.S. Army Officer, etc., move farther out of view. To top it off, the longer I remain on crutches the more unstable my left shoulder becomes. There is nothing that can be done about it until I am off crutches, but with delayed healing that also delays being able to ditch the crutches. With the added stress my Raynaud's has been flaring, but with an added twist. I typically get symptoms with cold, but was unaware that stress would affect it as well. With the pressure my shoulder is under my hand will turn bluish in color, which is new for me and alarming at first, because I thought it had to deal with my shoulder instability, which in a way it does, but is just a new turn on my Raynaud's. So yet again I am waiting on word from Millis!
I am trying to stay positive and maintain my precautions till I hear word otherwise, but it feels like my life is a game of chutes and ladders and that I have been hitting a lot of chutes lately! I am ready for the pool to open so that I can enjoy some exercise without stressing my body. I am also looking into therapy yoga to help with my mind, body, spirit, etc. I am willing to try whatever it takes to get my life back or a new perspective on the one I have. I feel that I may be naive to think that I can be the same person I was 5 years ago. There are things I need help changing and adjusting to and a new outlet physically for me to enjoy. I do know that I want to stop having surgeries though!
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Would you be willing to speak with my daughter who has hyper mobility eds?she lives in Indy too.
ReplyDeleteI apologize for the terribly long delay in response, but I would gladly speak with your daughter!
DeleteThanks for sharing your story. I have had RSD/CRPS since the age of 13 after a knee surgery. I was just diagnosed with hip dysplasia a few weeks ago and the ortho that I saw is not willing to operate. He says that there is nothing that can be done and i just need to live with the pain. I also likely have EDS, but I have not been offically diagnosed yet. You are so strong and thanks again for sharing your journey!
ReplyDeleteJulie,
DeleteWhat doctors have you seen in regards to the hip dysplasia diagnosis? With complicated cases, like the ones we are in, it takes a certain kind of doc to take on the case. It is part of the reason I go to Boston Children's because of the specialized care. Thank you for your kindness and interest in my blog!
I just had surgery with Dr. Maiers yesterday, and your blog was part of what put my mind at ease. Thank you so much for sharing your story and experiences. You are so strong, and so well-spoken and informed. Most of what one can find on the internet is complaints about specific doctors, so it was SO PERFECT to find someone with a long-standing relationship with this doctor who shared the ups and downs.
ReplyDeleteI am so sorry for the trials of EDS you are experiencing, but so grateful to have found your blog.
I am glad that my experience with Maiers was helpful to you! He is a great doc and although I have had the ones that have been the lows of my journey, my blog is not a place I want to bash people, but a place to help and advocate for others! You are in great hands with Maiers! Thank you for reading my blog!
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ReplyDelete